18 hours Ago
Hannah Campbell is in mourning. The TikToker made her first social media post since sharing news of 10-month-old daughter Elliana 's death , posting a video of herself, husband Jacob Campbell and their older daughter Ember getting ready for the funeral. Set to Andra Day 's song "Rise Up," the clip showed Hannah solemnly putting on makeup, before donning a gold necklace and beaded bracelet adorned with a charm baring her late baby girl's initial.
"Today we dress with heavy hearts to celebrate a life that changed ours forever," Hannah wrote on TikTok April 12. "This is for you, Ellie." Elliana passed away on April 7, less than one year after she was diagnosed with junctional epidermolysis bullosa (JEB).
“Our sweet girl Elliana Rose lost her battle last night," Hannah captioned an April 8 TikTok . "She passed peacefully, wrapped in love." JEB is a rare condition that causes fragile and blistering skin, according to Mayo Clinic .
The genetic disorder, which is largely found in infants, has no cure but can be improved with age. Hannah started documenting Elliana's JEB journey shortly after she was diagnosed with the condition at 2 weeks old. "Thought I was bringing a healthy baby girl into this world, little did I know what was to come," the content creator wrote on TikTok in October.
"We are given an estimated time frame of around 9 months with our girl." She added at the time, "I am hesitant to post this, but if it helps spread awareness for this horrible disease then i want that for my baby. Every single day she is in pain, yet still manages to smile through it.
She is so strong and so loved." In an April 14 TikTok posted on Hannah's account, Elliana's dermatologist said the baby girl suffered from a "severe" case of the condition. "Ellie was fighting for her life since the day she was born," the doctor shared.
"There's nothing Ellie's parents could have done to change what happened. The encouraging news is that I do think there's hope on the horizon as science and gene therapy advances. We're not there yet, but in the years to come, I think we can get there.
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