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The CEO of a leading disability charity says a man was "failed repeatedly" prior to his death last year at the N&N. Earlier this week an inquest into the death of Jordan Tooke concluded his death on August 31 was an accident after a central venous catheter (CVC line), used to administer dialysis, became disconnected from the machine three days earlier. Following the inquest Jon Sparkes, chief executive officer for learning disability charity Mencap, says Jordan was "failed repeatedly in his medical care throughout his life" up until his death.
A recent inquest of Jordan Tooke concluded his death, on August 31, was an accident (Image: Camilla Tooke) He said: "The inquest heard concerns were raised that delays in treatment may have contributed to Jordan's death. "It also heard that his quality of life was questioned when making decisions about whether to admit him to intensive care. "No family should ever have to ask if the NHS is doing everything that they can to save their son.
" Jon Sparkes, CEO of learning disability charity Mencap said Jordan was failed repeatedly in his medical care throughout his life. (Image: Camilla Tooke) Summing up the evidence at the inquest , at Norfolk Coroner's Court, assistant coroner Johanna Thompson said it "remains unknown" how the CVC line had become disconnected. She added she would not file a Prevention of Future Deaths report because the N&N was working on amending its procedures to treat patients with an air embolism as a result of the death.
READ MORE: Surprising second careers for some former City footballers Jordan's mother, Camilla, said after the inquest: "Everybody loved Jordan as he had such a big smiley personality and enjoyed making people laugh. Jordan suffered from severe learning disabilities and had end-stage kidney disease (Image: Camilla Tooke) "His death has left a huge hole in all our lives. READ MORE: Staff at city centre shop in the dark over plans for new business to move into site "Every day has been a challenge since we lost him and I'd do anything to have Jordan back but I know that’s not possible.
" Jordan suffered from severe learning disabilities and had end-stage kidney disease. In 2023, Camilla won a battle at a specialist court for life-saving treatment for her son after doctors said he would need to be sedated three times a week to be given dialysis - which would not be in his best interests. Jordan's inquest was held at Norfolk Coroner's Court on Wednesday (Image: Newsquest).
